I am pretty lucky, my whole family plays a huge role in supporting my fight with this disease.
I always thought, 'Why wasn’t I diagnosed earlier and what would have happened if I was?'
Over a 7 week period , every week I was seeing the consultant and he was saying ‘We don’t know.’
My diagnosis helped me be more aware of how fragile life is.
I’ve grown to accept the ‘new me” but not without having to re-adjust my life’s expectations quite a bit.
Some kids, they can’t walk, they can’t talk, they can’t see…But I can do that stuff, and I feel good that I can.
  • Julie

    Multiple Sclerosis, United States

    “I am pretty lucky, my whole family plays a huge role in supporting my fight with this disease.”
  • Nate

    Gaucher disease, United States

    I always thought, 'Why wasn’t I diagnosed earlier and what would have happened if I was?'
  • Rachel

    Thyroid Cancer, United Kingdom

    Over a 7 week period , every week I was seeing the consultant and he was saying ‘We don’t know.’
  • Darryl

    Prostate Cancer, United States

    My diagnosis helped me be more aware of how fragile life is.
  • Laurie

    Rheumatoid Arthritis, Canada

    I’ve grown to accept the ‘new me” but not without having to re-adjust my life’s expectations quite a bit.
  • Jack

    Acid Sphingomyelinase Deficiency (ASMD), United States

    Some kids, they can’t walk, they can’t talk, they can’t see…But I can do that stuff, and I feel good that I can.
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