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Our Stories

  • Joel sitting in the cab of his truck
    2020-09-17MMMM DD, YYYY
    Without Hesitation: Joel Navigates the Long Road of aTTP
    aTTP
  • 2020-09-14MMMM DD YYYY
    The Uncertainty of Living with Atopic Dermatitis
    ATOPIC DERMATITIS
  • image of man sitting on park bench holding his lower back with text "found out by accident" on screen
    2020-09-04MMMM DD, YYYY
    Listening to Learn: Patient Perspective on Autosomal Dominant Polycystic Kidney Disease
    RARE DISEASES
  • Illustrated image of lungs
    2020-08-31MMMM DD, YYYY
    Starting the Countdown to Better Asthma Control
    ASTHMA
  • 2020 TORCH Award recipient Rylee Noble
    2020-08-28MMMM DD, YYYY
    2020 TORCH Awards
    RARE DISEASE
  • 2020-08-24MMMM DD, YYYY
    Witnessing the Reality of Rare Diseases Through Photography
    RARE DISEASES
  • 2020-08-17MMMM DD, YYYY
    Taking Strides Against Multiple Sclerosis
    MULTIPLE SCLEROSIS
  • 2020-07-13MMMM DD, YYYY
    Inside Sanofi's Hemophilia Research
    HEMOPHILIA
  • 2020-06-15MMMM DD, YYYY
    Announcing the ‘Agents of Change’ Atopic Dermatitis Challenge Grant Recipients
    IMMUNOLOGY
  • 2020-06-14MMMM DD, YYYY
    Our Commitment to Humanitarian Aid for the Hemophilia Community
    HUMANITARIAN
  • Photo of asthma patient Amit
    2020-06-05MMMM DD, YYYY
    The Different Faces of Type 2 Inflammation: Amit and Tzippy’s Stories
    IMMUNOLOGY
  • Photo of the Finklea Family
    2020-05-26MMMM DD, YYYY
    Managing Life with Atopic Dermatitis: The Finklea Family’s Story
    ATOPIC DERMATITIS
  • Photo of Jodie, Cold Agglutinin Disease patient
    2020-05-14MMMM DD, YYYY
    Setting A New Course: Jodie’s Experience with Cold Agglutinin Disease
    COLD AGGLUTININ DISEASE
  • Photo of Save One Life patients in Philippines
    2020-04-17MMMM DD, YYYY
    No Boundaries, No Limits: Supporting the Bleeding Disorders Community
    HEMOPHILIA
  • Photo of Sean and Cheryl, sibling Pompe disease patients
    2020-04-07MMMM DD, YYYY
    Bonded by Family and Shared Hope for their Future
    POMPE DISEASE
  • Carol and her son
    2020-03-16MMMM DD, YYYY
    Blood is My Bond to Family and My Career Calling
    HEMOPHILIA
  • Photo of Bernard Delcour, a multiple myeloma. patient and his wife Marie-Pierre
    2020-03-02MMMM DD, YYYY
    Adjusting to Life with Multiple Myeloma: Bernard’s Story
    MULTIPLE MYELOMA
  • Photo of Vanessa Wolfeler, Global Head of Rare Blood Disorders
    2020-02-24MMMM DD, YYYY
    Partnering with the Rare Disease Community
    RARE BLOOD DISORDERS
  • Photo of ASMD patient, Anna
    2020-01-30MMMM DD, YYYY
    Perseverance in Rare Diseases
    RARE DISEASE
  • Photo from Rare Disease Day video
    2020-01-22MMMM DD, YYYY
    Make Your Pledge4Rare this Rare Disease Day
    RARE DISEASE

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