Book and coffee on table

Our Stories

  • Image of Fabry sisters
    2018-08-08MMMM DD, YYYY
    Living with Fabry Disease Then and Now
    FABRY DISEASE
  • 2018-05-15MMMM DD, YYYY
    Paula’s MPS I Story
    PATIENT ADVOCACY
  • 2018-05-15MMMM Do, YYYY
    All in the Family: Roman’s Fabry Disease Story
    PATIENT ADVOCACY
  • Photo of Allyson, Pompe disease patient
    2018-04-12MMMM DD, YYYY
    Allyson’s Rare Disease Story: Living with Pompe Disease
    POMPE DISEASE
  • 2018-02-28MMMM D, YYYY
    Discovering Hope
    RESEARCH
  • 2018-02-15MMMM D, YYYY
    2018 TORCH Awards
    PATIENT ADVOCACY

This website uses cookies to track its audience and improve its content. By continuing to browse this website, you agree to the use of such cookies.

Click here for more information on cookies.
OK