What diseases qualify as "LSDs"?

Lysosomal storage disorders (LSDs) are a class of 40+ rare genetic diseases that are all caused by an underlying genetic defect that leads to problems with an enzyme in the body—although each disease varies greatly in its symptoms and effects.

Below, we've included a list of diseases classified as LSDs; however, be aware that it may not be comprehensive. Many of these disorders have alternative names that are not all listed here, and some other diseases may be more commonly classified in other ways but still fit within the LSD category. If you don't see your diagnosis on this list, we encourage you to talk to your doctor about its classification, or contact us to clarify your eligibility.

  • Aspartylglycosaminuria
  • Cystinosis
  • Danon Disease
  • Fabry disease
  • Farber disease
  • Fucosidosis
  • Galactosialidosis
  • Gaucher
  • Glycogen storage diseases
  • GM1 gangliosidosis
  • Infantile sialic acid
  • Krabbé disease
  • Mannosidosis
  • Metachromatic leukodystrophy
  • MPS I
  • MPS II Hunter
  • MPS III Sanfilippo
  • MPS IV Morquio
  • MPS VI Maroteaux-Lamy
  • MPS VII Sly
  • Mucolipidosis
  • Niemann-Pick disease
  • Pompe disease
  • Pycnodysostosis
  • Salla disease
  • Sandhoff
  • Sialidosis
  • Tay-Sachs
  • Wolman Disease

Can I apply for the scholarship online?

No—at this time we are only accepting Chart Your Own Course applications by mail. Please download the application form, fill it out electronically (or print it first and fill it out by hand), and then mail a printed copy to the address specified on the form.

What will I need to provide for the application?

You'll find full details about program application requirements in the application form (PDF). Components you'll need to gather or prepare include:

  • A copy of your official school transcript(s)
  • A letter or statement from a medical professional confirming your diagnosis
  • Details of school activities, awards, and work experience (including dates and hours worked for all jobs)
  • Personal and/or parents' financial details (including income and taxes paid)
  • An appraisal (i.e., reference) from someone who knows you well, such as a teacher, counselor, work supervisor, etc. (the appraisal form is included within the application form)
  • Brief personal statements about your goals and objectives and how living with an LSD has affected you and your family
  • Non-traditional students are encouraged to apply. If you have questions concerning eligibility, transcripts or financial requirements please call 507-931-1682 and ask for the Chart Your Own Course Program Manager.

Learn more about the application process on the Rules & Regulations page.

How are winners selected?

Sanofi Genzyme's Chart Your Own Course program is administered by Scholarship America. Scholarship America is the nation’s largest designer and manager of scholarship and tuition reimbursement programs for corporations, foundations, associations, and individuals. Awards are granted without regard to race, color, creed, religion, sexual orientation, gender, or national origin. Fifteen recipients will be selected according to the following criteria:

  • Academic performance
  • Extracurricular activities and work experience
  • Personal and family circumstances
  • Personal statements about experiences and goals
  • An outside appraisal
  • Financial need

The review committee is entirely independent; no Sanofi Genzyme employees are involved in the evaluation process.

When and how will I find out if I've won?

Following the July 1 deadline, the review committee will evaluate all applications and select fifteen winners. All applicants will be notified by mail in July as to whether or not they have been awarded a scholarship. Get more timing details on the Rules & Regulations page.

What if I can't use my awarded scholarship for the upcoming academic year?

In the event of illness or other extenuating circumstances that prevents a recipient from using his or her award in the upcoming academic year, Sanofi Genzyme will consider a deferral of the award. Winners should contact Scholarship America immediately if such circumstances arise (see contact details at the right of this page, or on the application form).

If I don't win, can I apply again next year?

Sanofi Genzyme hopes to continue the Chart Your Own Course scholarship program beyond 20187, and if so, you are welcome to reapply in future years. Please note that personal statements and outside appraisals may not be reused from previous applications.

Why did Sanofi Genzyme establish the Chart Your Own Course program?

In our everyday work, Sanofi Genzyme sees firsthand the challenges faced by individuals and families living with LSDs. By creating a scholarship program aimed specifically at this community, we hope to offer another means of support to help these individuals pursue their goals for the future.